My Brain Story

If your new here, hi my name is Kara Simone. July 2 is DCC (Disorders of the Corpus Callosum) Awareness day. I wanted to share my story. If you don’t know what Agenesis of the Corpus Callosum (ACC) is already, it is complete or partial absence of the part of the brain that connects the two hemispheres. In some cases, ACC can be accompanied with other brain anomalies. It ranges in severity. I have Partial ACC and my case is mild, it can affect people in different ways. I got diagnosed at 4 years old after having a seizure and subsequently getting an MRI. Thank you for reading and I am happy to spread awareness.